Ciliopathy Alliance – http://www.ciliopathyalliance.org/
Joubert Syndrome & Related Disorders Foundation – https://jsrdf.org/
Joubert Syndrome/Great Ormond Street Hospital – https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/jouberts-syndrome
Contact a Family –
https://contact.org.uk/medical-information/conditions/j/joubert-syndrome/
NORD – https://rarediseases.org/rare-diseases/joubert-syndrome/
Join us on Facebook – Joubert Syndrome UK
And on Twitter – https://twitter.com/joubert_uk/