Contact Us

JSUK website, support, telephone, meetings and newsletters are funded entirely from private donations and fundraising via parents, friends and family members.

Although we are at the moment an unregistered Charity, we are still a charity governed by a constitution.

Committee members and volunteers give their time freely and we would welcome anyone who would like to join us.

Email: joubertsyndromeuk@gmail.com

Text (UK mobile/cell): 07919 926582